He took time to explain the course of the disease and he supported Karen and assured her that he would honor her choice. He never once inferred that she was wrong for choosing to live her life the best way she knew how. He never said it had to be his way.

At times, with other doctors, we as a family were made to feel that we didn't love Karen enough or that we wanted her to die and that was very, very hard for us. But certainly everyone supported her. Her mom and dad took care of her every day, and this was hard on them only because it's impossible to watch your child die, not because they thought what Karen was doing was wrong.

My sister was an amazing woman who had made decisions her entire life, and she deserved to make this decision as well.

This is a facility that meets the needs of doing disease investigation work, and we hope it will also meet our needs for decades to come.

This trial demonstrated a 70-percent increase in delaying the time to disease progression, as well as a marked increase in patient survival compared to historical controls.

When more and more of the disease accumulates in the brain they are able to compensate for a long time, but at some point they cannot cope with it anymore and they manifest the disease.